Author Archives: Lin

A very good question

“You wouldn’t change him though,would you?”  Strangley I have been asked that question many times. I am not sure how it could ever be answered. Would I choose for Evan  to live in a world he does not understand and where he is … Continue reading

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Classic fm

I was on my own in the car this morning heading to a meeting in Workington, I was listening to the radio,as I changed station it stopped briefly on Classic fm. I was  immediately transported back in time, remembering when that was the only thing, … Continue reading

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Aztec Falls

 It was pouring with rain on Monday morning as we set off for  Sandcastles water park in Blackpool. I dislike motorway driving intensley at the best of times but in the rain when I don’t know where I am going  it is … Continue reading

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Funtastic

Every year for the last 6 years we have been to Centre parcs in September as Evans birthday treat. It became part of his routine and the only place he has ever been on holiday. In fact he assumed that was where everyone went … Continue reading

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Rain man.

As Evan is autistic people often assume he will possess some sort of special skill. “I bet he is brilliant at maths?”they say,  Since the film “Rain man”  there has been a misconception that many people with autism are also savants pocessing phenomenal ability in … Continue reading

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The Lenovo

Evan has always been very technical and found his way around a computer with ease. I on the other hand manage the basics but my knowledge and interest go no further. When we needed a new computer it made sense that … Continue reading

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Little boxes

Last Saturday Evan attended his first “Club” he went to gymnastics. His inability to see people out of context coupled with his lack of desire to interact socially have restricted activities that most children take in their stride. Having been on the waiting list … Continue reading

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Copyright

 This evening Evan glued a paper moustache under his nose, sat at the table holding a pile of papers and delivered a funny news cast. Although it wasn’t his own work it was taken directly and word for word from an episode of … Continue reading

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Set 10218

 Evan was on his computer and all I could hear coming from the lounge was the monotone voice of a man perhaps in his late 30s early 40s talking about a Lego set in great detail.  Set number 10218. A modular building with … Continue reading

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The trail of Golden coins

 It is early September yet the shops are already starting to tell us “Christmas is on it’s way” Little chocolate santa’s,gold coins and selection boxes are starting to fill the shelves and before long Coca cola cans and bottles will don … Continue reading

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Boo!

 A few months ago Evan accidentally startled me as I came out of the kitchen, I screamed and did that on the spot dance thing you do when someone has made you jump. He thought this was the funniest thing he had  ever seen. … Continue reading

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Flyders,Tastebugs and Ellbells

Evans difficulties with speech,language and communication have changed vastly over the last 5 years. When he wasn’t talking I couldn’t imagine he ever would. Then came his own language that not even I fully grasped,followed by echolalia and quoting. Now, at times, his speach could … Continue reading

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Monica

This morning Evan was delighted it was Monday. Firstly and most importantly he has been counting down the days until the Paralympics finished and the Simpsons resumed! Initially when he told me he was extremly unhappy that the paralympics were … Continue reading

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Social Independence

With his 9th Birthday fast approaching Evan is very keen to have some independence. He has seen boys his age alone in the park and is very envious they are without an adult. He is desperate to walk  the short distance … Continue reading

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Climbing mountains

Three years ago Evan and I  started walking the fells together in a bid help him channel his unquenchable energy levels. It was fantastic to see him free and running.  In everyday life Evan needs constant and vigilant supervision.He is … Continue reading

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Queens English

Yesterday I took Evan to get his hair cut.He felt really important and coped brilliantly. The hairdresser asked questions and Evan answered them.He was extremely polite and looked like a well educated,confident, well spoken young man. Until  she went off topic and … Continue reading

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One of those moments…

 Tonight I found Evan  perched naked on top of the bathroom sink with his head out the skylight in the seconds it took me to get his PJ’s from the other room. In the bath he had an “accident” which he launched in … Continue reading

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The wedding

To say that 2012 has been our year is an understatement. Evan has achieved more this year than I ever could have hoped for. It started with a wedding.  Evan adores our neighbours Nat(Natercia) and Stuart.Over the last few years, between them they … Continue reading

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The tooth doctor.

 Something simple like a visit to the dentist has in the past been peppered with comedy and stress in equal measure. Evan was registered with an NHS dental practice in Carlisle some 35 miles away. The dentists constantly changed and we never had the … Continue reading

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Operation London-The Autism Show

We set off  early to the Excel centre looking forward to seeing Evans picture on display.We met up with my auntie Pat who had travelled from Berkshire to support us.  The Excel centre was not nearly as busy as I had anticipated which was … Continue reading

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Operation London-The Hotel

 The lock on the door to the room stopped it being opened from the outside,however opened easily from the inside when the handle was turned. Evan discovered this whilst I was in the shower. Luckily I heard the “click” the second … Continue reading

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Operation London-the adventure begins

Evans main concern about going to London was that he might miss the Simpsons.He likes to watch it at 6.00pm and the same epiosode again at 7.00pm.In times of stress or change this becomes something he relies on to give him some … Continue reading

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Operation London

In March I entered a picture of Evan and scruffy into the National Autistic Society photo competition entitled “Friendship” There were two chances of winning a camera. The first was by gaining the most public votes and the second, the … Continue reading

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Opting out

In early October 2011 I decided to home eduacate Evan This was certainly not a decision I took lightly and was something I had been thinking about for some time. One night after a particularly difficult evening with Evan processing his day at … Continue reading

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Life’s a beach

Once I stopped trying to to make Evan enjoy the things I felt he should and embraced his interests life got so much better for us both. Although I will admit the hosepipe era had it’s moments…. We used to … Continue reading

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Between a rock and a hard place.

Over the last few years at times I have felt very isolated, as if Evan and I had no place that we truely belonged. When he was younger,I found it increasingly difficult when we spent time in the company of other children. It highlighted Evans difficulties … Continue reading

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Stop the world I want to get off

Once the ball was rolling and assessments were underway I suddenly found myself  catapulted into a world that I previously had no idea existed. One I didn’t like at all. It was like we had just won the x-factor Evan and I … Continue reading

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Grandma!

When Evan was two my Mum broached her concernes about his lack of speech. I was furious. Appalled that she would insinuate he was not perfect. I took it as a direct insult to my parenting.We had a terrible row and I didn’t … Continue reading

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The penny that didn’t drop

Evan reached all of the usual  physical milestones on time, sitting at six months crawling around nine months and took a couple of staggering steps at thirteen months. He crawled with his feet flat on the floor and his legs rigid.He … Continue reading

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The day it all began!

I was standing in Sainsburys at the cash desk with a half eaten bag of  jam doughnuts and an empty carton of chilled custard with sugar all over my chin. I was 9 months pregnant with Evan. Prior to pregnancy I was … Continue reading

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Scruffy the wonder dog

I read about  dogs being beneficial for children with autism  several years ago and had thought about getting one for Evan although he had never shown any interest.  I decided to wait until he was a little older as we live in an upstairs flat with no garden and life was … Continue reading

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Green eyed monster

In those early days before concerns were raised regarding Evans development I was blissfully unaware that his behaviour was anything to be concerned about. Although I was very aware he was not talking. A friend came to visit with her daughter who was 9 … Continue reading

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Tesco……. every little helps

Evan liked going to Tesco. His routine was to go to the cafe for fish fingers,shop,using a large trolley,and then sit in the toy ice cream van for as long as he was allowed.  For the best part of 5 years this was … Continue reading

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Blue paint

After what has felt like a very long week….the bathroom is now operational and other than a few finishing touches is complete! On Thursday Evan picked out the lino he wanted for the bathroom. He thoroughly enjoyed flicking through the large books of samples … Continue reading

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Made you look,made you stare…..

Today Evan and I were down at the river,I was sat in the sun and Evan was laying in the water propped up on his elbows, facing up stream, fully clothed with his head down so the water rushed over his face as … Continue reading

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The list

Yesterday with the bathroom still “under construction” we were both starting to feel the strain. Staying at Mums out of his routine with things changing that he can’t control Evan is holding on by his fingertips. His energy levels seem to have tripled,he can’t … Continue reading

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Welcome to Holland

Evan doesn’t go to birthday parties. He attended his last when he was almost 4 where he sat at the far end of the hall with his back to the proceedings and his fingers firmly in his ears. I realized that day I was … Continue reading

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New bathroom

This week we are having a new bathroom fitted. Over the years so much water has ended up on the bathroom floor(and through the kitchen ceiling) due to Ev flooding it and being over zealous in the bath, that the floor boards have become completely rotten and … Continue reading

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Good Morning!

Yesterday Evan spotted a rather garish digital alarm clock on the market. He badly wanted it, he had recently seen one on television. So clutching his pocket money we went back to the stall and he made his purchase. Once I … Continue reading

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The Thinker

Whilst out walking the other day this is the conversation Evan had with me. “When Grandma dies are you going to cry?” “ Yes, Evan I will cry when Grandma dies“ “How long will you cry for? More than a day?“ … Continue reading

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